To [George] Church, open consent isn’t just a philosophical consideration; it’s also a practical one. If the PGP (Personal Genome Project)were locked down, it would be far less valuable as a data source for research — and the pace of research would accordingly be much slower. By making the information open and available, Church hopes to draw curious scientists to the data to pursue their own questions and reach their own insights. The potential fields of inquiry range from medicine to genealogy, forensics, and general biology.
And the openness doesn’t serve just researchers alone. PGP members will be seen as not only subjects, but as participants. So, for instance, if a researcher uses a volunteer’s information to establish a link between some genetic sequence and a risk of disease, the volunteer would have that information communicated to them.
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ABOUT THIS BLOG
“The Future of Self-Knowledge” research blog encompasses the techniques and methodologies used in corporate horizon scanning & forecasting, and their counterparts in ancient divination practices and the rise in personal genome services.
This research is used as a platform to develop personalised futures techniques for The FATE Institute (The Futures Association for Therapy & Entertainment), a think tank dedicated to developing personalised foresight services and products.
Posts on this site will capture thoughts, experiments and current areas of interest in relation to speculative and personal futures.
My other websites: www.jessicacharlesworth.com
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